Newly Diagnosed

Being diagnosed with a chronic and rare disease can be stressful. The resources below are available to educate and support families as they navigate through this new rare disease world. We are committed to providing the most accurate, up-to-date, physician approved information about the disease, treatment options, and latest research. Sign up for our newsletter to receive additional updates.


The CRMO Patient Registry hosted at the Coordination of Rare Diseases at Sanford (CoRDS) was created to better understand and research the nature of the disease as well as its progression. Please click here to learn more and sign up.

Possible Medications:

Many medications used to treat CRMO are also used to treat other rheumatic conditions.


Additional Resources

Created by a team of pediatric rheumatologists and families, this website has useful information about CRMO, treatment, and support.

Kaila's Komfort, Inc.

Kaila’s Komfort is a 501(c)(3) nonprofit organization providing support to children and adults diagnosed with CRMO/CNO. They ship free care packages around the world to kids and adults with CRMO/CNO and their families.

Arthritis Foundation

The Arthritis Foundation is a website dedicated to providing the latest information on this disease.

Facebook Support Group

The CRMO Facebook group is a private community for patients and families to ask questions, read stories and gather information in a safe and compassionate environment.

Brave CRMO Warriors