Around the world..

No matter where you are located, we want you to be a part of our mission. We need your help to raise awareness and funds so we can start supporting patients and advancing our understanding of this disease.


The path to a better life...

Our goal is to create a better life for everyone affected by this disease. Whether you are newly diagnosed or have been living with this disease for most of your life, we want to support you. We will continue to fight for better treatment through all stages of life.

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In the news...

Together we can make a difference!

Faith Murray

Eric's Heroes: One girl's outlook on the world can give us all 'renewed faith'

Kaila's Komfort, Inc.

Kaila Mellos at Kaila's Komfort sends care packages all around the world to those with CRMO and their families.

Vicky Smith Snyder

Watch Vicky's journey with CRMO.

faith murray first news

Faith Murray

"Run For Faith" a fundraiser for stopcaidnow

Faith Murray

Lynnwood teen with rare bone disease dedicates herself to helping others

We want to hear from you.

We would love to share your stories and pictures with other CRMO families.

Ready to learn more? Contact us today to get started