The mission of the CRMO Foundation is to support and improve the health and well-being of Chronic Recurrent Multifocal Osteomyelitis (CRMO) patients and their families by furthering the efforts of life-changing research, increasing access to resources and education and promoting awareness of the disease.
Founded by a group of engaged parents determined to promote awareness and support vital CRMO research.
Maintaining a platform to share accurate and updated information about the disease and research.
Supporting strong scientific research leading to better treatments and care for patients and families.
Linking families around the globe to build connections and support systems within the community.
Engaging communities globally to increase awareness and fundraising to support vital research.
What is CRMO?
Chronic Recurrent Multifocal Osteomyelitis, also known as Chronic Non-bacterial Osteomyelitis (CNO), is a rare, autoinflammatory bone disease of unknown etiology. It involves inflammation of one or more bones and can be chronic. In a properly functioning system, inflammation is a normal process and is the way the immune system protects us from infections and germs. However, in CRMO, there is no infection. The immune system wrongly attacks normal bone and causes inflammation.
The CRMO Foundation is an official NORD Member Organization and part of the Global Genes Rare Foundation Alliance.
The Global Genes Rare Foundation Alliance is a community of rare disease foundations who have committed to working with Global Genes | RARE Project and other nonprofit foundations to collaborate to create a stronger collective voice in the rare disease community. To learn more, visit their website at www.globalgenes.org
The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. To learn more about NORD and their programs, please visit their website at www.rarediseases.org.